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Monthly Archives: June 2015

Ligthning strike or maybe not …

25 Thursday Jun 2015

Posted by sallyspaleoplatformminusme in Uncategorized

≈ Comments Off on Ligthning strike or maybe not …


The article at the end is appropriate and a great help for those living with ME.

The Lightning Process (LP) is frequently recommended to me with questions on have I tried it and how it has helped other sick people.  Esther Ranzen loved it for many many years declaring in the media how it cured her daughter of ME.  Recently Esther Ranzens daughter again was in the news as they now find she has Lyme disease and is still not well …

When I first heard about LP I was interested and read up as much as I could.  Anybody who is seriously ill is desperate to find a cure or something that will provide relief.  I realised that several ME “miracle” cures seemed to be this LP / NLP reprogramming the mind … So rather than having it done to me I trained to understand what it was and how to do (N)LP, mostly distance learning but then through a series of workshops.

Temporarily I realised it did reprogramme my brain into believing something that was not true.  But reality kicked in and I relapsed each and every time.  Luckily I did not do too much I.e. no running, but relapsed badly.  Physical / mental / emotional exertion and / or sensory overload just makes somebody with ME sicker.  People with ME strive not to strive.

Over time I also had then read ME forums discussing LP with some terrifying stories of people becoming totally bed bound having believed they could do more than they could.  Many people who had LP done to them were told that if it did not work for them then they were not doing it correctly and many were also told not to discuss LP away from the course.

ME is a physical illness which through its nature also becomes a mental challenge in coping.

One problem is that there is no formal diagnosis such as a blood test.  Post mortems have found clear evidence of differences in a person who had ME i.e. lesions on the spine, evidence of problems through muscle biopsies and in the last year tests show up differences, changes in the brain, spinal fluid, basic molecular differences, some similar to cancer and other illnesses but unique differences only attributed to ME, so we are moving forward toward a recognised medical diagnosis. Once we have a formal diagnosis methodology that this is a physical illness it will be an enormous step forward for ME.

Then the process of a cure hopefully can be worked towards.  Here is the article I am referring to.   http://www.positivehealth.com/article/cfs-me/me-cfs-ethical-and-unethical-uses-of-nlp

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