Sometimes there are days that defeat explanation – although as I ate “off piste” yesterday, then maybe that explains today, or I talked too much yesterday.  If I had tried walking, been over exerting then it would feel explainable but I cannot identify anything that would mean this sort of “flare up”, but this is the way ME can represent itself.

With the ME on occasion – usually for me 1-2 days a week – can be more – I just cannot stay awake and must must sleep.  This morning was one of the days.  The good aspect is that mostly I am not in pain, numbness and tingling all over.  The frequent negative is that I have breathing problems, a high heart rate, heaviness all over and feeling of total exhaustion.

I just about woke up when Chris was getting ready to leave for work, semi conscious of the dogs landing on the bed, brief fight for space and duvet with Ella, then out cold.  I did not wake up again until 1300, knew I must get some fluids in.  That was a major effort as it does feel extremely difficult to move my limbs, horrible dizziness and feeling of about to collapse.  But drank some water, ate a non-Paleo snack and then crashed again until 1730.

Each time I woke up I checked my heart rate – it was between 120-130 bpm, which I then also take as a sign that my body must rest and is struggling.  It is a scary symptom along with my heart jumping a bit, feeling erratic.  Breathlessness is also not pleasant as it is there all of the time I am awake.

I forced myself downstairs early evening to eat.  Now curled up on the sofa and ready to crash and sleep again.

I have learnt that it is best to give in and not fight.  My body is displaying the symptoms desperately calling for rest and sleep, time for healing.  I have no idea what tomorrow will bring, but hope that I will feel a little more normal!!  Fingers crossed.